Touchpoints – resources for developmental milestones
Touchpoints
A list of resources to address new issues faced at developmental milestones. This page offers links that enable you to leave this site and go directly to the linked site. SBCC is not responsible for the content on or any links contained on these linked sites. The links are provided to assist families in locating supports, services, and information related to living with spina bifida. Inclusion on this list of links below does not imply personal experience with or endorsement of the organization or company by the SBCC, its board of directors or staff.
All Age Groups
Achieving a Better Life Experience (ABLE savings accounts) – SSA
Indiana INvestABLE Accounts
Kentucky STABLE Accounts
Ohio STABLE Accounts
West Virginia Able Accounts
Center for Disease Control Spina Bifida Information Page
Center for Spina Bifida at CCHMC Clinic Contact List
Cincinnati Children’s Hospital Medical Center Family Resource Center
Cincinnati Children’s Hospital Medical Center Jack Rubinstein Library
Cincinnati Children’s Hospital Medical Center Special Needs Resource Directory
Division of Developmental and Behavioral Pediatrics at CCHMC – Educational Sessions
Guidelines for the Care of People with Spina Bifida- SBA
Guidelines for People with Spina Bifida by Age – SBA
Living with Spina Bifida Bowel and Bladder Management – Coloplast
Qualifying for Developmental Disabilities Services – Hamilton County
Shunt Complications and Risks – Hydrocephalus Association
Ohio Center for Autism and Low Incidence (OCALI)
University of Cincinnati Center for Excellence in Developmental Disabilities
Newborn
Developmental Disabilities Services Early Intervention – Hamilton County
Developmental Milestones Tracker – CDC Learn the Signs, Act Early
Indiana First Steps – Early Intervention
Kentucky First Steps – Early Intervention
Living with Spina Bifida – Infants – CDC
Pre-School
Cincinnati PARENT Magazine – Special Needs Directory
Living with Spina Bifida – Toddlers and Preschoolers – CDC
Right Under My Nose – a book and activities for children with spina bifida
School Age
A Guide for School Personnel – Kennedy Krieger Institute
Advocating for Yourself – Wrightslaw
ADDitude – Could My Child Have ADHD?
Beyond Crayons – Information Packet for School
Educational Issues Among Children with Spina Bifida – SBA
Living with Spina Bifida – School-Aged – CDC
Millie Goes to Camp – Hollister
Millie’s Swimming Success – Hollister
Zones of Regulation – Emotional Control Training
Adolescents and Teens
Employment Support and Training – Opportunities for Ohioans with Disabilities (OOD)
Family Resource Network of Ohio – Charting the LifeCourse
Living with Spina Bifida – Adolescents and Teens – CDC
Ohio Employment First Transition Guide
Pacer’s National Parent Center on Transition
US Department of Education Transition Guide
Adults
Community Safety 10 Module Training – Ohio Employment First
GetSSAHelp.com – emailed questions are answered free of charge
Living with Spina Bifida – Adults – CDC
Social Security Administration