Spina Bifida Web Links
The Spina Bifida Coalition of Cincinnati, Inc. has compiled a list of Web sites that you may find helpful in learning about Spina Bifida and its related issues.
Advocacy
Americans with Disabilities Act
Education
Indiana Department of Education – Special Education
Indiana Protection and Advocacy
Indiana Resource Center for Special Kids (IN*Source)
Kentucky Department of Education – Special Education
Non-verbal Learning Disorder on the Web
US Department of Education Office of Special Education
US Department of Education Office for Civil Rights
Ohio Department of Education – Special Education
Ohio Coalition for the Education of Children with Disabilities
Parent Mentors in Ohio Schools
We Connect Now – Helping college students with disabilities to succeed
Employment
Project SEARCH at Children’s Hospital Medical Center
Goodwill Industries International, Inc.
Opportunities for Ohioans with Disabilities
Healthy and Ready to Work National Resource Center
Financial Assistance
United HealthCare Children’s Foundation
Medical
Meningomyelocele-Pediatric Urology Information
MOMS Management of Myelomeningocele Study
YouTube video, “Management of Myelomeningocele Study”
Spina Bifida Clinic at Children’s Hospital Medical Center
Nutrition
Online Discussion Groups
SB-List for Parents – hosted by the University of Wisconsin
Special Connections Community – hosted by Cincinnati Children’s Hospital Medical Center
Spina Bifida Mom Blog – privately hosted by a mom with Spina Bifida
SB Parents Listserv – hosted by the Spina Bifida Association
Orthotics
Examples of Lower Limb Orthotics
Recreation
Butler County Challenger Baseball
Cincinnati Icebreakers Sled Hockey
Cincinnati Recreation Commission – Therapeutic Recreation
Cincinnati Therapeutic Riding and Horsemanship
Fishing Has No Boundaries – Ohio Chapter
Hamilton County Special Olympics
New Perceptions Summer Pre-School Therapy
National Center on Physical Activity and Disability
Perfect North Slopes – adaptive snowsports and lessons
Redwood Summer Camp for Children
Revere Dance Studio – Wheelchair Dance
TAASC: The Adaptive Adventure Sports Coalition
Regional Resources
Cincinnati Children’s Hospital Medical Center Special Needs Resource Directory
Circle Tail Assistance Dog Program
Hamilton County Developmental Disabilities Services
Jack Rubinstein Libraries at Cincinnati Children’s Hospital Medical Center
MobilityWorks – Adapted vehicles
MC Mobility – Adapted vehicles
Ohio Department of Health Help Me Grow Program
Parent Group Collaborative of Greater Cincinnati
Residential
CILO – Center for Indpendent Living Options
Family Self Sufficiency Program (City of Cincinnati)
People Working Cooperatively – Home Repairs
SOAR (Services for the Ownership and Acquisition of Residences) through Living Arrangements for the Developmentally Disabled
Steve Gold’s Information on Housing
Respite
Parent Group Collaborative Respite List – Greater Cincinnati
Vineyard Community Church Respite Evenings
Social Security Disability Insurance FAQ’s
Social Security Disability Information
Spina Bifida
Children with Spina Bifida Resource Page for Parents
Center for Parent Information and Resources
“Right Under My Nose: A Book for Children with Spina Bifida”
Spina Bifida Association of America
Miscellaneous
We Connect Now, a Website for Students with Disabilities
The Center for Universal Design
Late, Lost and Unprepared: A Parents’ Guide to Helping Children with Executive Functioning
Managing My Money: Banking and Budgeting Basics