Spina Bifida Web Links
The Spina Bifida Coalition of Cincinnati, Inc. has compiled a list of Web sites that you may find helpful in learning about Spina Bifida and its related issues. This page offers links that enable you to leave this site and go directly to the linked site. SBCC is not responsible for the content on or any links contained on these linked sites. The links are provided to assist families in locating supports, services, and information related to living with spina bifida. Inclusion on this list of links below does not imply personal experience with or endorsement of the organization or company by the SBCC, its board of directors or staff.
Advocacy
Americans with Disabilities Act
Patients Rising – Insurance and Medical Care Advocacy
Education
Indiana Department of Education – Special Education
Indiana Protection and Advocacy
Indiana Resource Center for Special Kids (IN*Source)
Kentucky Department of Education – Special Education
Non-verbal Learning Disorder on the Web
US Department of Education Office of Special Education
US Department of Education Office for Civil Rights
Ohio Department of Education – Special Education
Ohio Coalition for the Education of Children with Disabilities
Parent Mentors in Ohio Schools
We Connect Now – Helping college students with disabilities to succeed
Employment
Project SEARCH at Children’s Hospital Medical Center
Goodwill Industries International, Inc.
Opportunities for Ohioans with Disabilities
Healthy and Ready to Work National Resource Center
Financial Assistance
United HealthCare Children’s Foundation
Medical
MOMS Management of Myelomeningocele Study
YouTube video, “Management of Myelomeningocele Study”
My Health Passport – editable pdf
Spina Bifida Clinic at Children’s Hospital Medical Center
Nutrition
Online Discussion Groups
Special Connections Community – hosted by Cincinnati Children’s Hospital Medical Center
Spina Bifida Mom Blog – privately hosted by a mom with Spina Bifida
SB Parents Listserv – hosted by the Spina Bifida Association
Orthotics
Examples of Lower Limb Orthotics
Recreation
Butler County Challenger Baseball
Cincinnati Icebreakers Sled Hockey
Cincinnati Recreation Commission – Therapeutic Recreation
Cincinnati Therapeutic Riding and Horsemanship
Fishing Has No Boundaries – Ohio Chapter
Hamilton County Special Olympics
New Perceptions Summer Pre-School Therapy
National Center on Physical Activity and Disability
Perfect North Slopes – adaptive snowsports and lessons
Redwood Summer Camp for Children
Revere Dance Studio – Wheelchair Dance
TAASC: The Adaptive Adventure Sports Coalition
Regional Resources
Cincinnati Children’s Hospital Medical Center Special Needs Resource Directory
Circle Tail Assistance Dog Program
Hamilton County Developmental Disabilities Services
Jack Rubinstein Libraries at Cincinnati Children’s Hospital Medical Center
MobilityWorks – Adapted vehicles
Ohio Department of Health Help Me Grow Program
Residential
CILO – Center for Indpendent Living Options
Family Self Sufficiency Program (City of Cincinnati)
People Working Cooperatively – Home Repairs
SOAR (Services for the Ownership and Acquisition of Residences) through Living Arrangements for the Developmentally Disabled
Steve Gold’s Information on Housing
Respite
Parent Group Collaborative Respite List – Greater Cincinnati
Vineyard Community Church Respite Evenings
Social Security Disability Insurance FAQ’s
Social Security Disability Information
Spina Bifida
Center for Parent Information and Resources
“Right Under My Nose: A Book for Children with Spina Bifida”
Spina Bifida Association of America
Spina Bifida Fact Sheet – National Institutes of Health
Miscellaneous
We Connect Now, a Website for Students with Disabilities
The Center for Universal Design
Late, Lost and Unprepared: A Parents’ Guide to Helping Children with Executive Functioning
Managing My Money: Banking and Budgeting Basics
Software for Individuals with Disabilities
A Developmental Timeline for Growing Up
West Virginia Resources
Center for Excellence in Developmental Disabilities
Children with Disabilities Community Services Program (CDCSP)
CDCSP Application Form
Disability Rights of West Virginia
Dept. of Education – Hand in Hand Guidance for West Virginia Families
Intellectual/Developmental Disability Waiver
Office of Maternal, Child and Family Health, WV Birth to Three
Parents Guide to Special Education
West Virginia Bureau for Medical Services – Medicaid Waiver Programs
West Virginia Developmental Disabilities Council – Comprehensive Resource List