Spina Bifida Web Links

The Spina Bifida Coalition of Cincinnati, Inc. has compiled a list of Web sites that you may find helpful in learning about Spina Bifida and its related issues.

Advocacy

Americans with Disabilities Act

Disability Information

Disability Rights Ohio

Federal Transit Authority

Health Care Reform Ohio

Inclusion Press

SBA Legislative Action Center

Education

ARC of Indiana

About Special Kids – Indiana

Indiana Department of Education – Special Education

Indiana Protection and Advocacy

Indiana Resource Center for Special Kids (IN*Source)

Kentucky Department of Education – Special Education

Kentucky Education Rights

Non-verbal Learning Disorder on the Web

US Department of Education Office of Special Education

US Department of Education Office for Civil Rights

Ohio Department of Education – Special Education

“Whose IDEA Is This? A Parent’s Guide to the Individuals with Disabilities Education Improvement Act of 2004” State of Ohio

Ohio Coalition for the Education of Children with Disabilities

Parent Mentors in Ohio Schools

We Connect Now – Helping college students with disabilities to succeed

Wrightslaw

Employment

Project SEARCH at Children’s Hospital Medical Center

Goodwill Industries International, Inc.

Opportunities for Ohioans with Disabilities

Healthy and Ready to Work National Resource Center

The Point ARC of Northern KY

Financial Assistance

Anna’s Celebration of Life

Ambucs

Aubrey Rose Grant

Building Blocks For Kids

Child Wellness Fund

First Hand Foundation

Paige’s Princesses

A New Chance Foundation

United HealthCare Children’s Foundation

Medical

Fecal Incontinence

The Hydrocephalus Association

Meningomyelocele-Pediatric Urology Information

MOMS Management of Myelomeningocele Study
YouTube video, “Management of Myelomeningocele Study

Spina Bifida Clinic at Children’s Hospital Medical Center

What is Chiari Malformation

Nutrition

Choose My Plate

Cincinnati Nutrition Council

USDA Dietary Guidelines

Online Discussion Groups

SB-List for Parents – hosted by the University of Wisconsin

Special Connections Community – hosted by Cincinnati Children’s Hospital Medical Center

Spina Bifida Mom Blog – privately hosted by a mom with Spina Bifida

SB Parents Listserv – hosted by the Spina Bifida Association

Orthotics

Examples of Lower Limb Orthotics

Recreation

Butler County Challenger Baseball

CCHMC Healthworks

Camp Echoing Hills

Camp Emmanuel

Camp Joy

Camp Rancho Framasa

Cincinnati Icebreakers Sled Hockey

Cincinnati Recreation Commission – Therapeutic Recreation

Cincinnati Therapeutic Riding and Horsemanship

Cincinnati Top Soccer

Courageous Kids Camp

Fishing Has No Boundaries – Ohio Chapter

Hamilton County Special Olympics

Joni and Friends – Ohio

Kamp Dovetail

Midwest Cheer Elite

Miracle League Baseball

New Perceptions Summer Pre-School Therapy

National Center on Physical Activity and Disability

Perfect North Slopes – adaptive snowsports and lessons

Recreation Unlimited Camp

Redwood Summer Camp for Children

Revere Dance Studio – Wheelchair Dance

Row America – Hamilton

Sparklers Cheer Team

Stepping Stones Center

TAASC: The Adaptive Adventure Sports Coalition

TAASC Facebook Page

Regional Resources

Cincinnati Children’s Hospital Medical Center Special Needs Resource Directory

Circle Tail Assistance Dog Program

Hamilton County Developmental Disabilities Services

Jack Rubinstein Libraries at Cincinnati Children’s Hospital Medical Center

MobilityWorks – Adapted vehicles

MC Mobility – Adapted vehicles

Ohio Department of Health Help Me Grow Program

Parent Group Collaborative of Greater Cincinnati

Residential

CILO – Center for Indpendent Living Options

Family Self Sufficiency Program (City of Cincinnati)

Go Section 8 Housing Search

Ohio Rental Housing Locator

People Working Cooperatively – Home Repairs

SOAR (Services for the Ownership and Acquisition of Residences) through Living Arrangements for the Developmentally Disabled

Steve Gold’s Information on Housing

Respite

Parent Group Collaborative Respite List – Greater Cincinnati

Recreation Unlimited

Stepping Stones Center

Vineyard Community Church Respite Evenings

Social Security Disability Insurance FAQ’s

Social Security Disability Information

Spina Bifida

Children with Spina Bifida Resource Page for Parents

Center for Parent Information and Resources

“Right Under My Nose: A Book for Children with Spina Bifida”

Spina Bifida Association of America

SBTween2Teen

Miscellaneous

We Connect Now, a Website for Students with Disabilities

The Center for Universal Design

Late, Lost and Unprepared: A Parents’ Guide to Helping Children with Executive Functioning

Managing My Money: Banking and Budgeting Basics

Software for Individuals with Disabilities

Birth Defects

A Developmental Timeline for Growing Up