Create Your Future Webinar Series 2017

We are excited to share these educational sessions designed to help people living with Spina Bifida to live their best life with intention. Understanding the challenges that come with the diagnosis leads to improved planning so you can put the appropriate accommodations in place for better management. Click on the links below to view the recorded webinars on YouTube and to download the handouts from the presentation.

Charting the LifeCoursewebinar recorded on April 11, 2017

Presented by: Celia Schloemer, Family Support Coordinator
UC University Center of Excellence in Developmental Disabilities

Set life goals and identify assets and barriers to achieving them.

Presentation Handouts:

Achieving Social Continencewebinar recorded on May 23, 2017

Presented by: Brian VanderBrink, MD
Cincinnati Children’s Hospital Medical Center Urology

Learn up-to-date techniques for bowel and bladder continence across the lifespan from least to most invasive.

Presentation Handouts:

Fiber recommendations addressed by Dr. VanderBrink after the live webinar.

Managing Executive Dysfunction webinar recorded on  June 6, 2017

Presented by: Alexa Stern, Graduate Research Assistant with Grayson Holmbeck, PhD
Loyola University Chicago

Executive dysfunction can be a stumbling block to reaching your life goals. Find out how it can complicate Spina Bifida care and learn accommodations you can initiate to manage this challenge.

Presentation Handouts:

Understanding Orthopedic Options –  webinar recorded on  July 5, 2017

Presented by: Ashlee Bolger, MD
Cincinnati Children’s Hospital Medical Center Rehabilitation and Physical Medicine

Orthopedic devices are often an essential element for age-appropriate development and personal independence for people with Spina Bifida. Find out about your options and know when to adopt them as part of your everyday ambulation.

Presentation Handouts:

Building Your Support Networkwebinar recorded on August 1, 2017  

Presented by: Tim Vogt
Starfire Council

The data is clear; people with disabilities grow increasingly lonely and isolated as adults. Tim Vogt talks viewers through the process of connecting with others in your community who have common interests.

Presentation Handouts:

Maximizing Your School Experiencewebinar recorded on August 29, 2017

Presented by: Terri Doerr, Parent Mentor at Lakota Schools and
Pam Wendel, Parent

Individualized Education Programs (IEP’s) are documents developed for each public school child who needs special education and/or accommodations to succeed in school. In this webinar, we outline typical difficulties in the classroom for students with spina bifida, provide concrete examples of successful IEP goals, and review the IEP process and your rights as a parent.

Presentation Handouts:

Navigating the Maze of Resourceswebinar recorded on Setpember 12, 2017

Presented by: Marta Getz, LISW-S at the Center for Spina Bifida Care at Cincinnati Children’s Hospital Medical Center and Anne Tapia, MSW, LSW, for the Regional Autism Advisory Council of Southwest Ohio

Management and care of a person living with spina bifida can be expensive, time-consuming, stressful, and exhaust a family’s resources. Thankfully, a myriad of services and supports are available to help improve quality of life for individuals and families living with spina bifida and other disabilities. However, knowing whom they are, what they provide, and how and when you qualify can be confusing. In this webinar, we will explore the “Maze of Resources” offered in the Greater Cincinnati area that help make life just a little bit easier. 

Presentation Handouts:

Advocating for Your Best Life – webinar recorded on October 24, 2017

Presented by: Celia Schloemer, Family Support Coordinator
UC University Center of Excellence in Developmental Disabilities and
Danielle Berg, recent college graduate who was born with spina bifida

To successfully advocate for your best life, you must first construct a thoughtful strategy. In this final presentation of the series, Celia works with Danielle to demonstrate the Charting the LifeCourse tool, guiding her from abstract life goals to a concrete action plan.

Presentation Handouts:
see handouts for Charting the LifeCourse at the top of the page