Create Your Future Webinar Series 2017

We are excited to share these educational sessions designed to help people living with Spina Bifida to live their best life with intention. Understanding the challenges that come with the diagnosis leads to improved planning so you can put the appropriate accommodations in place for better management. Click on the links below to view the recorded webinars on YouTube and to download the handouts from the presentation.

Charting the LifeCoursewebinar recorded on April 11, 2017

Presented by: Celia Schloemer, Family Support Coordinator
UC University Center of Excellence in Developmental Disabilities

Set life goals and identify assets and barriers to achieving them.

Presentation Handouts:

Achieving Social Continencewebinar recorded on May 23, 2017

Presented by: Brian VanderBrink, MD
Cincinnati Children’s Hospital Medical Center Urology

Learn up-to-date techniques for bowel and bladder continence across the lifespan from least to most invasive.

Presentation Handouts:

Fiber recommendations addressed by Dr. VanderBrink after the live webinar.

Managing Executive Dysfunction webinar recorded on  June 6, 2017

Presented by: Alexa Stern, Graduate Research Assistant with Grayson Holmbeck, PhD
Loyola University Chicago

Executive dysfunction can be a stumbling block to reaching your life goals. Find out how it can complicate Spina Bifida care and learn accommodations you can initiate to manage this challenge.

Presentation Handouts:

Understanding Orthopedic Options –  webinar recorded on  July 5, 2017

Presented by: Ashlee Bolger, MD
Cincinnati Children’s Hospital Medical Center Rehabilitation and Physical Medicine

Orthopedic devices are often an essential element for age-appropriate development and personal independence for people with Spina Bifida. Find out about your options and know when to adopt them as part of your everyday ambulation.

Presentation Handouts:


Building Your Social Network

Tim Vogt, Executive Director of Starfire Council August 1, 2017

Maximizing You School Experience

Terri Doerr, Parent Mentor Lakota Schools with parent Pam Wendel August 29, 2017

Navigating the Maze of Resources September 2017

Advocating for Your Best Life October 2017